More than 10,000 people in our region are affected by neuromuscular disease. There are over 180 different neuromuscular diseases – but there are few cures.
Neuromuscular diseases, such as amyotrophic lateral sclerosis (ALS) and muscular dystrophies, are complex and often life-long degenerative conditions. Treating people with neuromuscular disease requires diagnostic expertise, therapeutic management, and state-of-the-art rehabilitation facilities. Improving symptoms, increasing mobility and extending life are the goals of today’s treatment, though researchers are working on a cure.
However, without the capacity to offer clinical trials, our groundbreaking neuromuscular disease research can’t move to the next stage of treatment for patients. With many patients unable to travel outside of the Ottawa area, offering clinical trials and improved treatment options in Ottawa will enhance our patient care.
Our goal is to establish the Neuromuscular Research Centre at The Ottawa Hospital, so that we can:
- Offer patients the latest treatments and therapies, driven by research.
- Centralize all neuromuscular specific health-care services, neurologists, specialists, clinics, rehabilitation, and treatments.
- Solidify our hospital as a national leader in neuromuscular disease research in Canada, and around the world.
How you can help
We are raising $150,000 to support the innovative Neuromuscular Research Centre at The Ottawa Hospital, in order to facilitate better research that will lead to improved treatment options for patients, like Karen, with neuromuscular diseases.
For more information, please contact Sharon Martin, Senior Director, Philanthropy, The Ottawa Hospital Foundation, 613-798-5555 x 19084, firstname.lastname@example.org.
Or Heather McLean, Vice-President, Development and Corporate Philanthropy, The Ottawa Hospital Foundation, 613-798-5555, x 13034, email@example.com.