Born: January 22, 2003 – 32 weeks
Due date: March 23, 2003
Weight at birth: 680 grams (3 lbs, 8 oz) 680 grams
NICU stay: 51 days
“My water broke at 30 weeks and I was admitted to the General for two weeks on bed rest. Then I had Kylie. The experience was amazing, despite being a little bit traumatized in the beginning. Everybody was wonderful, Kylie got a nickname from one of the nurse, Kybear, from her strength and attitude. We still call her that.
She was only on oxygen for 16 hours and in an incubator for three weeks. But she kept having sleep apnea spells, so the nurses wanted to monitor that. She’d have one – just stop breathing – then she’d go five or six days and have another one. But she was fine when we left the hospital. Kylie had two holes in her heart, top and bottom ventricles, but they healed up on their own. She had problems with her blood pressure and was on medication for five years, but that stopped as well.
When Kylie was in the NICU, her older sister Tiffennie helped us get through it. She was four. She would tell people ‘my sister’s really sick. Her heart is broken and her doctors are trying to fix it.’
When she finally came home, she weighed five pounds 13 ounces (822 grams).
It’s still an experience we learned from and we will never forget the staff there. Everybody was so amazing.
--Kelly Agar, Kylie’s mom
The NICU graduate today: Kylie enjoyed sports but recently stopped her involvement in them when she was diagnosed with supraventricular tachycardia, where her heart beats really fast all of a sudden. She now wears a heart monitor. Kylie started high school in September and is in Grade 9. She loves photography and plans to be a photographer when she grows up. Her family is very important to her, she adores her little sister, Savannah. She is very compassionate and loves helping people. Kylie is now getting her high school community hours with Big Brothers, Big Sisters.
The Ottawa Hospital is renovating its current NICU facilities at the General Campus to give each baby a separate room. This allows caregivers to individualize each small patient’s environment and provide a family-centric model of care that will also include technology and equipment updates.
A new NICU is critical for babies like Kylie to receive the best, most up-to-date treatments developed at The Ottawa Hospital. This helps give prematurely born babies the best chance at surviving, thriving and growing up.