By Donna Jakowec
I realize now that it wasn’t just a journey to heal my body. It was also a journey to heal my emotional and mental state. Here are some highlights… and some lowlights. But I have come out the other side stronger.
Tuesday, Oct. 25, 2016
My doctor’s office called. It was about the biopsy I had on my left breast last week. I went alone, as Jonathan was in Winnipeg on business. My GP [general practitioner] quietly said the words I was dreading. All of a sudden, I felt like I was in quicksand and everyone could see me going down, and no one could help me. When I got home, I burst into tears and kept saying to my kids, “Mommy has cancer.”
Wednesday, Oct. 26, 2016
Today, I met the surgeon, Dr. John Lorimer. He spent a long time answering questions. Likely I'll just have a lumpectomy. I felt much better after talking to him.
Monday, Nov. 7, 2016
Appointment with Dr. Lorimer. Jonathan came with me. There are two tumours, which is a game changer. This means a mastectomy. Surgery is in a week. No one knows. I haven’t told anyone at work or the rest of my family. I am the third with a breast cancer diagnosis: my mom and my sister, Laura. It feels like such a bad dream… Wake me up!
Monday, Nov. 14, 2016
Surgery day – I keep thinking, ‘I am living Laura’s nightmare’… She only lived three years. Is that my destiny too? Jonathan left, as he had to get the kids ready for school. The surgery went well. At home, there were two huge bouquets of flowers and chocolate from Jonathan.
Tuesday, Nov. 22, 2016
Everyone was gone – the kids to school; Jonathan to work. I removed all the bandages. What a shock to see my breast gone! Big scar from my sternum to my rib.
Tuesday, Nov. 29, 2016
Follow-up appointment with Dr. Lorimer. He gave me the pathology report. I cried when I got home because the flatness of my chest was obvious. I started wearing Jonathan’s dress shirts…very big, loose, so no one sees how misshapen I am.
Dec. 1 to 13
I decide that things are going to be normal for everyone. We still have skiing, music lessons, hockey, and school. The two kids caught me weeping a few times. It’s so upsetting for them. I went shopping for new clothes. And went back to work.
Wednesday, Dec. 14, 2016
Appointment with medical oncologist Dr. Mark Clemons. Jonathan came with me. Dr. Clemons is very upbeat. Maybe things will be ok. He tells me the plan. I have an estrogen/progesterone sensitive cancer – bye-bye ovaries – and he doesn’t think chemotherapy will work for me. Radiation and hormone therapy instead. I won’t be losing my hair! Good thing, I just got my hair done!
Thursday, Jan. 26, 2017
First day of radiation treatment. I’ll have radiation every day for five weeks.
I went to work almost every day throughout radiation. Definitely tired, but I read that doing light exercise takes the fatigue edge off. I started on my rowing machine or going out for a run on nice days.
Busy with the kids’ activities. I don’t talk about my cancer to anyone. I wake up at night and stay awake until morning, thinking this a bad dream.
Monday, March 6, 2017
Last day of radiation and my family came to see me ring the bell. That night was my first feeling of abandonment. I hit some emotional wall. I started to panic but went to bed rather than say anything to anyone. I cried for half the night. I didn’t feel healed. I think of my sister every day and her breast cancer struggle, nothing worked for her at all. I started questioning this whole process. I decided to do more running because I do feel better afterward.
Thursday, March 16, 2017
Took my first pill of Tamoxifen. Is this supposed to ward off cancer? Shouldn’t the pill be way bigger? It’s so tiny!
March and April 2017
Things are busy at home. I never talk about my cancer. Jonathan doesn’t ask, neither do the kids. Everyone is doing well, which is what I want. I have feelings of panic and anxiety that I’ve never felt before. I’m anxious between doctor visits. I feel like the doctor visits are ‘islands’ of safety and health. But between appointments, I feel completely lost, like I have been thrown off the island and must swim to the next island, but I can’t swim very well.
Wednesday, May 3, 2017
Oophorectomy surgery – my ovaries were removed today. I asked Jonathan to drop me off at the [Irving Greenberg Family] Cancer Centre [run by The Ottawa Hospital but located] at the Queensway Carleton Hospital. I take the alone route, not wanting to bother anyone. The surgery went well. Everyone says I look good (for which I am grateful), but in my head, I feel as though I am falling apart.
I’ve been oscillating between happiness and anxiety, never depressed but really anxious. I saw a brochure at the hospital on cancer support groups. I am having a huge problem concentrating on anything. My work is suffering. I get overwhelmed with multi-tasking. I’m afraid that I’ll have an accident.
I called and the session has started. But I can have a private session with someone at the psychosocial oncology services...I jumped at that.
Saturday May 27, 2017
I ran the Ottawa Race Weekend 5 km race tonight! It was so hot, but I placed 89/374 for women in my age category. It was fun. Running really makes me happy!
Friday June 2, 2017
Went to the Nordik Spa with my mom and friends. I’m on an emotional roller coaster again. I was loving the evening, and then it jumped into my head that I could die in three years…like my sister. I got big reassuring hugs, and stopped crying.
Wednesday, July 5, 2017
11 a.m. appt. psychosocial oncology service at the cancer clinic [at the General Campus of The Ottawa Hospital]. I met social worker Karen McRae. I like her a lot. She is very patient and not irritated by my rambling on about how anxious I am between doctor appointments. We talked for an hour.
Friday, July 21, 2017
Had another appointment with the social worker. We also talked about me taking time for myself.
Went on holidays. Lots of wind, rain, cold while camping but we were having so much fun, it didn`t matter. Focussing on what Karen said, taking time for myself and getting those around to help me. I am very bad about asking for help.
Saturday, Sept. 9, 2017
I didn’t feel great, and tomorrow is THE RIDE fundraiser for The Ottawa Hospital. I’d signed up in May to cycle 117 kms. So many people sponsored me in this event, from family to Facebook friends that I have never personally met!
Sunday, Sept. 10, 2017
THE RIDE day – I got ready, but not sure I could do it. Figured I’d decide if I’m going to ride once I got there. At Tunney’s Pasture, where it starts, someone suggested I start out and if it’s too much, call for a pick up. So I get on my bike and go. The first 60 km were good, but then I started doubting if I could do it. Then this fella, Denis, rode with me and we chatted. The last 20 km went by very fast. Finally, I crossed the finish line. I cycled the full 117 kms!
Wednesday, Sept. 20, 2017
Appointment with Dr. Clemons. He is kicking me to the Wellness Beyond Cancer program. I’m not happy about that. My doctor was my safety net. But I have no choice. So, I’ll give this wellness program a chance.
Thursday Nov. 23, 2017
I need to find a way to convince myself that for now everything is ok. Went to the Wellness Beyond Cancer program presentation. It’s going to be fine. I can do this. I’ve done so much this year. Treatment didn’t stop me from anything.
Saturday, Dec. 2, 2017
A wonderful day at the Nordik Spa with my co-workers. I never once thought about my cancer…finally!!! Over the past year, I have gone from thinking I was going to die soon to realizing that I can live with this chronic disease, and that many women do very well. I’ve really got my life back…. thanks to The Ottawa Hospital… and for that I’m grateful.