Fierce determination pushes patient to walk again after Guillain Barré Syndrome diagnosis

Avid cyclist Fran Cosper had his life change when he woke one night and couldn’t feel his legs. Doctors at The Ottawa Hospital diagnosed him with Guillain Barré Syndrome. Although he was paralyzed, Fran was determined to walk again.

Long-distance cyclist Fran Cosper described himself as being in the best shape of his life as he headed into the winter of 2017. However, in mid-February he woke up in the middle of the night unable to feel his legs. The next morning, when Fran tried getting out of bed, he slammed onto the floor – his strong legs suddenly useless. Soon after, he was diagnosed with Guillain Barré Syndrome (GBS) – facing the possibility of permanent paralysis. Little did he know the road ahead would involve a team of experts, the help of 3D virtual reality at The Ottawa Hospital, and a determination not only to walk again, but also to help other patients.

When Fran first experienced those sudden symptoms, he initially thought it couldn’t be anything serious as he was very health conscious. He attempted to make his way to the basement that morning to work out. “I went to get on my hands and knees, and fell face-first on the carpet. I thought, ‘Well, I can’t move. This is much more serious.’ My wife, Elise, came down and saw that I had facial paralysis, and thought I’d had a stroke.”

But Fran knew that strokes typically affect only one side of the body and that something else — something serious — was happening.

What is Guillain Barré Syndrome?

Fran is secured to an adjustable bed prior to using the CAREN machine at the Ottawa Hospital Rehab Centre.
Fran in hospital.

After a thorough assessment, Fran was diagnosed with GBS. This rare autoimmune disorder causes the immune system to attack the nerves, damaging the myelin sheath, which is the nerves’ protective covering. As a result, the brain can’t transmit signals to the nerves in the muscles, causing weakness, numbness or, as in Fran’s case, paralysis.

An infection or virus can bring on GBS. The 56-year-old had had two colds back-to-back, which may have thrown his immune system into overdrive. Within days, his balance was off, and he had difficulty lifting pots to cook dinner. Hours later, the disease was full blown, attacking his nervous system and Fran couldn’t move.

“It was like having an out-of-body experience. I mean my brain was working fine but my body wasn’t doing what I asked it to do.”
– Fran Cosper

“We see patients with Guillain Barré Syndrome at The Ottawa Hospital Rehabilitation Centre probably five or six times a year,” says Dr. Vidya Sreenivasan, a doctor of physical medicine and rehabilitation. Some have mild cases, but others, like Fran’s, are more serious.

A more challenging road to recovery

About one in 100,000 Canadians contracts GBS every year. Recovery can take more than a year because the nerves re-grow slowly, one millimetre per month. For Fran, the journey would be much longer.

The disease continued its nerve damage following his admission to the hospital. After two weeks, he transferred to the Rehab Centre, where his care team included doctors, psychologists, social workers, recreation therapists, physiotherapists, respirologists, occupational therapists, and nurses.

“I decided at that point, I was going to fight it. I was going to fight back and do the best I could to get better even though I didn’t know what the outcome was going to be.”
– Fran Cosper

Fran was completely dependent on this team for all of his care. He needed to be washed, dressed, and turned in bed. He couldn’t even close his eyes. The nurses had to tape his eyelids shut so he could sleep.

“It was like having an out-of-body experience. I mean my brain was working fine but my body wasn’t doing what I asked it to do,” says Fran. He also faced excruciating pain because of the damage done to his nerves. As Fran lay there unable to move in his hospital bed, he made a decision.

“Oddly, I wasn’t afraid. I decided at that point, I was going to fight it. I was going to fight back and do the best I could to get better even though I didn’t know what the outcome was going to be.”

Rehab team ready with state-of-the art technology

Fran’s excellent fitness level, as well as his determination and positive attitude, helped him through when it came to the rigorous therapy plan. He had physiotherapy five hours a day, including three times a week in the Rehab Centre pool. Within two months, he could stand and take steps with help. He learned to walk again thanks in part to our Virtual Reality lab – one of only two in Canada.

Fran in pool.
Fran would visit the Rehab Centre pool three times a week.

“The pool and this 3D room were invaluable. It would have taken me a lot longer to get my legs back if I didn’t have access to those tools.” – Fran Cosper

The CAREN (Computer-Assisted Rehabilitation Environment) system combines room-sized 3D graphics, a platform that moves with the patient in a harness, as they explore the 3D world, a dual-tread remote-controlled treadmill, and world-class motion analysis technology. Preprogrammed visual presentations allow the patient to respond to an environmental stimulus by shifting weight, increasing or decreasing speed and even making specific motions. Difficulty levels can be increased gradually as the patient progresses further in their rehabilitation treatment plans.

Fran in VR lab.
Fran learning to walk again thanks in part to our Virtual Reality lab – one of only two in Canada.

“This room is right out of sci-fi. It really challenges your body. After an hour of doing exercises, I was just sweating. The pool and this 3D room were invaluable. It would have taken me a lot longer to get my legs back if I didn’t have access to those tools.”

“I’d basically been swiped off the planet for a year. But the only negative thing about being in the hospital was the disease itself.” – Fran Cosper

For Dr. Nancy Dudek, Medical Director, Amputee Program at The Ottawa Hospital Rehabilitation Centre, this unique system offers many benefits to patients. “There’s no end to things you can do with that sort of creativity. To be able to be hooked up to a harness without the support of the parallel bars still gives you the safety aspect. It’s a very innovative and beneficial system.”

Installed in 2010 in partnership with the Canadian Forces and with support from the community, the CAREN system was initially used in part to help injured soldiers returning from Afghanistan. Since then, many patients have benefitted, including those who have had a traumatic brain injury, stroke, neuromuscular disease, amputation, or chronic pain.

Continuing the road to recovery

Released from the Rehab Centre in October 2017, tears were shed by Fran and nurses who cared for him. It was those nurses who helped Fran with day-to-day care, teaching him how to wash and dress himself and be independent again.

Fran on exercise ball
Fran receiving care from the rehab team.

“I can honestly say that the kindness and level of care I got really humbled me. The nurses and staff have just been marvellous,” says Fran. “I’d basically been swiped off the planet for a year. But the only negative thing about being in the hospital was the disease itself.”

He walked out of the Rehab Centre using a walker. When he returned a month later for a follow-up appointment, he walked in on his own.

Today, Fran is back riding his bike – not quite to the 100-kilometer distances, yet, but his therapy continues. He still deals with pain, and his arms were slower to recover. His fine motor skills in his fingers are taking longer to get back to normal. As a saxophone player, he’s motivated to get his fingers working again.

“I’m kind of at the point now where I’m thinking I may be able to play again someday. I’m hopeful that I’ll be able to play my sax because my fine dexterity is improving – it’s a work in progress.”

Giving back as a volunteer

Fran will never forget two volunteers in particular who were there for him when he was being cared for at the Rehab Centre. Chris and Claude would come and take Fran for coffee and to talk. Initially, he had no idea who these blue-vested people were, but Fran quickly learned the important role they play at the hospital.

“I remember asking Chris why he was a volunteer. Chris explained to me that he had an inoperable brain tumour, and he was going to die. He told me, ‘I figured the hospital took such good care of me that I would spend the rest of my time volunteering.’ I broke into tears and decided right there I had to become a volunteer,” says Fran.

Fran in blue vest.
Today, Fran gives back as a volunteer at our hospital.

Pre-COVID, Fran would spend two days a week meeting patients, sometimes visiting his old room at the Rehab Centre, inspiring them about what is possible. “I remember seeing a woman in a hallway; she was on a gurney and going in for surgery – she was by herself. I stopped, leaned over, and told her it was going to be ok. Afterwards, I saw her again and she said, ‘Thank you.’

That’s why Fran proudly wears the blue vest. He’s experienced the dark days and today, he’s happy to be able to help others when they need a reassuring voice to help them through – just like Chris and Claude helped him. He’s also grateful to be able to volunteer his time at the hospital that cared for him during his long journey to recovery.

Listen to Fran Cosper in his own words during a guest appearance on Pulse: The Ottawa Hospital Foundation Podcast.

Your donation will help make sure patients like Fran have access to state-of-the-art equipment necessary to help them recover.

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Celebrating a “re-birthday” each year since having a cancerous brain tumour removed

Nine years ago, The Ottawa Hospital saved Kimberly Mountain’s life after the discovery of a cancerous brain tumour. Today, she’s confident if the cancer comes back, The Ottawa Hospital will be ready to save her again.

We each have a defining moment in our life — a moment that changes our life forever. For some, that moment is not as clearly defined as it is for others. For Kimberly Mountain, that moment was the discovery of a cancerous brain tumour.

In February, 2011, Kimberly was 28 years old and out with her then-boyfriend, Matt Mountain, when she felt a weird, strong twitch on the right side of her face as they were driving. “Then all I remember is waking up. Our car was pulled over on the side of the highway. Paramedics were there, and I heard Matt say, ‘Kim just had a seizure’,” recalls Kimberly.

Kimberly was rushed by ambulance to the trauma centre at the Civic Campus of The Ottawa Hospital. She would have another seizure, and then an MRI revealed a brain tumour on her right frontal lobe. That moment changed her life.

For two weeks, The Ottawa Hospital became Kimberly’s second home. Her family and Matt never left her side. “Oddly enough, my memories of being in the hospital aren’t of a sad time at all. They are actually some of my favourite memories, filled with friends and family. Everyone I loved was there. And we made friends with the amazing nurses and staff,” says Kimberly.

Kimberly Mountain at The Ottawa Hospital

Awake brain surgery

On March 7, 2011, Kimberly had brain surgery. Her surgeon, Dr. Charles Agbi, would keep her awake for the operation. This is a highly-specialized surgical procedure that requires a team approach led by an experienced neurosurgeon and a neuroanesthesiologist. It enables the neurosurgeon to remove tumours that would otherwise be inoperable because they are too close to areas of the brain that control vision, language, and body movement. Regular surgery could result in a significant loss of function. By keeping Kimberly awake, the medical team was able to ask her to move certain body parts and speak during the procedure.

When she thinks back to the operation, she remembers never being worried. “I guess the hospital staff had made me feel safe and confident.”

During surgery, Kimberly could feel the vibrations of the team drilling into her head, but she didn’t mind it. “I kept talking, laughing, and singing Disney songs, like “Hakuna Matata.” I was telling them how I was going to go to Disney World when it was over. Five hours seemed like just one,” says Kimberly.

For Dr. Agbi, this type of interaction is critical to the success of the surgery. “If they’re only answering questions [surgery staff] are asking them, sometimes we might miss something.”

Transformational technology

It is advances in technology like Kimberly experienced that allow neurosurgeons at The Ottawa Hospital to provide transformational care.

In fact, donor support brought a specialized microscope to Ottawa, allowing surgeons to perform fluorescence-guided surgery. The technique requires patients to drink a liquid containing 5-aminolevulinic acid (5-ALA) several hours before surgery. The liquid concentrates in the cancerous tissue and not in normal brain tissue. As a result, malignant gliomas “glow” a fluorescent pink color under a special blue wavelength of light generated by the microscope. This allows surgeons to completely remove the tumour in many more patients, with recent studies showing that this can now be achieved in 70 percent of surgeries compared to the previous 30 percent average. The first surgery of this kind in Canada was performed at The Ottawa Hospital.

Dr. Nicholas sat down, held my hand, and said the word — cancer. Everything went blurry, and this time I couldn’t stop the tears. I had been strong up until that moment.” – Kimberly

Oncologist reveals brain tumour is cancerous

When pathology tests on the tumour came back several weeks later, Kimberly met with her oncologist, Dr. Garth Nicholas, and he revealed the news she feared the most. “Dr. Nicholas sat down, held my hand, and said the word — cancer. Everything went blurry, and this time I couldn’t stop the tears. I had been strong up until that moment,” remembers Kimberly.

During her cancer treatment, Kimberly faced 30 rounds of radiation, followed by chemotherapy. Matt, who had proposed during Kim’s long stay in the hospital, took her on trips to amusement parks or convertible drives to help get her through the difficult times. The couple even made a special trip to Disney World. “All I could think of during my brain surgery was how happy and carefree it was there. The world was suddenly much more exciting, and I was aware of every little smell, feeling, and moment—something I think maybe only cancer patients can appreciate.”

This all provided Kimberly with a distraction from the side effects, the tiredness, and the hair loss. Losing her hair was one of the most difficult parts of treatment. “I hated losing my long, beautiful hair.”

.Kimberly Mountain

Less than a year later, on January 6, 2012, Kimberly received her last chemotherapy treatment. “I asked those pills to eat that cancer.” Her wish would be realized when an MRI could not detect any residual cancer. Kimberly transformed into a cancer survivor.

Kim Mountain and her family as she rings the bell.

Through a mother’s eyes

Kimberly has become known for never showing up for an appointment without a small contingent of supporters. She always has her family by her side, including her mother, Cyndy Pearson. Cyndy laughs that Kimberly always has an entourage—even when she learned her tumour was cancerous. “We were all there. When there’s something important, we’re all there. When Dr. Garth Nicholas leaned over, and said, ‘Kim you have cancer,’ we were all crying.”

A mother and a daughter hugging
Kimberly Mountain and her mother, Cyndy Pearson

Cyndy is grateful to The Ottawa Hospital for saving Kimberly, her youngest of three children. She points out March 7, 2011 is a new date circled on the family’s calendar—Kimberley’s re-birthday.

Cyndy is also forever grateful for Dr. Agbi’s care. “If this surgery hadn’t happened, she wouldn’t be having any more birthdays. If the hospital had not been able to save her…” Cyndy’s voice trails off.

 

Kimberly Mountain

“Even if the cancer does come back, I am confident that The Ottawa Hospital will be able to save me again, thanks to its constant innovative research and clinical trials that are making treatment better and saving lives.” – Kimberly Mountain

Cancer survivor nine years later

Today, Kimberly has a tattoo on the back of her neck that reads “Hakuna Matata – March 7, 2011”. She celebrates every milestone — including being cancer free — with family, friends, and of course Matt, who never left her side and who is now her husband. You could say it’s like a Disney ending.

Not everything went back to normal. “My precious hair will never be the same,” says Kimberly. “There’s a big spot where my hair will never grow back. The whole right side of my head is permanently bald.” However, always finding the positive, Kimberly says she can do her hair in ten seconds these days, thanks to a few different wigs, “I may actually own more wigs than shoes.”

All joking aside, Kimberly is grateful for each day. “Even if the cancer does come back, I am confident that The Ottawa Hospital will be able to save me again, thanks to its constant innovative research and clinical trials that are making treatment better and saving lives.”

For now, Kimberly takes it one day at a time, celebrating life’s little moments each day.

Donate today to ensure we can provide patients like Kimberly with the advanced care they need.

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Innovative 3D printing sets The Ottawa Hospital apart

The Ottawa Hospital’s 3D Printing Laboratory takes an innovative approach and develops PPE to help safeguard colleagues who care for patients critically ill from COVID-19.

The Ottawa Hospital was the first Canadian hospital to have an integrated medical 3D printing program for pre-surgical planning and education. Since the arrival of the program, made possible by the generosity of a donor, The Ottawa Hospital has been a leader in innovative advancements in this area. Doctors have been able to harness 3D printing to create detailed anatomical plans before a patient arrives in the operating room, reducing the need for invasive surgery, and ultimately improving outcomes with a significant cost savings. It’s this program, which positions the hospital’s Medical Imaging Department at the forefront of international developments in radiology and is revolutionizing the way surgery is done. It’s this kind of forward thinking that allowed The Ottawa Hospital to be ready when the COVID-19 pandemic arrived in Ottawa, mobilizing innovative 3D printing technology at the hospital, in local companies, and out in the community, to quickly create PPE for front-line workers.

Ready to face the pandemic

Dr. Adnan Sheikh
Dr. Adnan Sheikh holding a 3D printed replica

As members of The Ottawa Hospital’s 3D Printing Laboratory watched how COVID-19 was spreading throughout China and Europe, they quickly became aware of how some parts of the world were facing dramatic equipment shortages. That’s when Dr. Adnan Sheikh, Director of the 3D Printing Laboratory, and his team started to think creatively about how they could help their colleagues be better prepared for the pandemic.

“I reached out to Dr. David Neilipovitz, Department Head of Critical Care, to offer help and we identified many areas where the 3D Printing Lab would be in the best position to help in case of any shortages,” says Dr. Sheikh.

From that conversation, the 3D printing team started developing several different designs of PPE (Personal Protective Equipment) to help safeguard colleagues who would be caring for patients critically ill from COVID-19.

“We were able to create oxygen tents, goggles, tube connectors, intubation shields, and face shields which are a key piece of equipment,” explains Dr. Sheikh.

These transformational advancements wouldn’t have been possible just five years ago.

“This is an innovative technology. It’s really evolved and it’s changing the way we practice medicine.” — Dr. Adnan Sheikh

Testing the prototypes

Once the 3D lab began producing pieces of PPE, each one needed to be tested. Dr. Neilipovitz played a key role in testing these designs in advance, allowing The Ottawa Hospital to be innovative during challenging times.

“Thanks to our 3D team, they allowed us to think outside the box and quickly find us solutions to be ready to help our patients.” — Dr. David Neilipovitz

In fact, Dr. Neilipovitz and his team in the ICU were instrumental in helping the 3D team refine and test prototypes to ensure they were up to the task. A crucial step in the process and one that required patience, expertise, and an open mind.

A perfect example was an intubation shield designed with the help of Leonard Lapensee, an Imaging Technician, who works at the hospital. The ICU team tested this prototype; they modified it and it was later mass-produced. This is now used in the ICU, operating rooms, and emergency rooms.

Dr. Neilipovitz trying on a prototype mask
Dr. David Neilipovitz trying on a prototype mask

 

3D face mask with valve
The end result which includes a 3D-printed blue valve at the top

 

Community support takes The Ottawa Hospital to the next level

Once they received the green light for the 3D equipment, The Ottawa Hospital was then able to produce as much quantity as the lab could handle. However, the collaboration went beyond the lab and even the walls of The Ottawa Hospital.

“We knew we had limited resources and were aware that we wouldn’t be able to manufacture and print everything in the lab. So, we prototyped these devices and pushed them out for production at different sites at The Ottawa Hospital. We also reached out to volunteers in the community who had offered to help.”

There was a collaboration with the University of Ottawa Makerspace led by engineering professor Dr. Hanan Anis and her team to help with the design and prototyping process. It didn’t stop there—the community support continued to grow to help produce PPE such as face shields, and even headbands.

A good example of that support was when Ottawa resident Marc Beal stepped forward to lend a hand. “Due to resource constraints, we needed help printing headbands for face shields. Marc and his friends, who have home 3D printers, approached us and printed these headbands for us,” explains Dr. Sheikh.

Marc Beal working at home
Marc Beal working at home on his 3D printer

 

Dr. David Neilipovitz with an oxygen hood
Dr. David Neilipovitz testing an oxygen hood

 

Another key piece of equipment was the oxygen helmet, which is used with patients who require a constant flow of oxygen. Once again, the 3D lab was able to prototype it. “We tested it and once we were convinced that it would help our patients, we reached out to Darcy Cullum at Ottawa Mould Craft, who was happy to work with us.”

Ultimately, that community support allowed The Ottawa Hospital to ensure staff have the PPE needed to keep both care team members and patients safe during the peak of COVID-19.

The best part of all, notes Dr. Sheikh, is that this all came about organically. “Colleagues helping colleagues—having an open mind and being willing to integrate what we can contribute. That included assessing the gear and testing it out to make it reality. I feel privileged to live in Ottawa; our community support system is the best in the world!”

COVID-19 may have turned the world upside down but it was a forward-thinking donor in 2016, who allowed The Ottawa Hospital to have the technology in place to be ready when our patients needed us most.

“With COVID-19 everything has changed. 3D printing now has a different role in the medical world.” — Dr. Adnan Sheikh

The Ottawa Hospital is a leading academic health, research and learning hospital proudly affiliated with the University of Ottawa.

Donate today to ensure The Ottawa Hospital is equipped with the most advanced technology when patients need it most.

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Decoding the mystery of Parkinson’s disease

For more than 200 years, no one has been able to solve the Parkinson puzzle. While the exact cause of the disease remains a mystery, dedicated researchers at The Ottawa Hospital are gaining ground—determined to solve the puzzle.

Dr. Michael Schlossmacher
Dr. Michael Schlossmacher in his lab at The Ottawa Hospital.

For more than 200 years, no one has been able to solve the Parkinson puzzle. Parkinson’s disease is the second most common neurodegenerative disease after Alzheimer’s. It affects approximately 100,000 Canadians—8,000 here in Ottawa. The national number is expected to double by 2050. Each day, many of those patients face uncontrolled trembling in their hands and limbs, the inability to speak loudly, loss of sense of smell, and pains from stiffness.

While the exact cause of the disease remains a mystery, dedicated researchers at The Ottawa Hospital are gaining ground—determined to solve the puzzle. Ottawa is a recognized centre for neuroscience research. Dr. Michael Schlossmacher is the director of the Neuroscience program at The Ottawa Hospital and while he admits Parkinson’s is complicated and complex, there is hope.

“I strongly believe we can solve that riddle. We have the expertise to make a major contribution to a cure for this disease.” Dr. Michael Schlossmacher

Predicting the risk of Parkinson’s

For Schlossmacher, a step forward in unravelling the mystery of this disease came when he was struck by the idea of a mathematical equation, which could potentially foreshadow the disease before it develops. “I’m convinced that by entering known risk factors for Parkinson’s into this model, it is indeed possible to predict who will get the disease.”

Risk factors for Parkinson’s disease include:

  • age
  • chronic constipation
  • reduced sense of smell
  • family history
  • chronic inflammation such as hepatitis or types of inflammatory bowel disease,
  • environmental exposures
  • head injuries
  • gender, as Parkinson’s affect more men than women

Dr. Schlossmacher and his team of researchers are currently combing through data to test the accuracy of their theory to predict Parkinson’s.

To date, Dr. Schlossmacher and his team have analyzed more than 1,000 people, and the results are promising. “The surprising thing so far is the prediction formula is right in 88 to 91 percent of the cases to tell us who has Parkinson’s and who doesn’t—and this is without even examining the movements of a patient.”

The goal is now to expand to field testing in the next two years. According to Dr. Schlossmacher, should the results show the mathematical equation works, this could allow doctors to identify patients who have high scores. “We could modify some of the risk factors, and potentially delay or avoid developing Parkinson’s altogether.”

Partners Investing in Parkinson’s Research

Team PIPR RFR
Team PIPR co-captain Karin Fuller, left, with Elaine Goetz and fellow co-captain, Kristy Shortall-Cain.

Research is costly and community support is vital to help unleash new discoveries. In 2009, a group of investment advisors came together to create Partners Investing in Parkinson’s Research, more commonly known as PIPR. Each year, the group participates in Run for a Reason and raises money as a part of Tamarack Ottawa Race Weekend. In 11 years, the group has raised $1.4 million for The Ottawa Hospital’s researchers and clinicians.

PIPR has not only helped to fund research toward better treatment and hopefully a cure for Parkinson’s, but the group has also brought much-needed attention to the disease. For Dr. Schlossmacher, funding for research from groups like PIPR, means more hope for the future. He is quick to add that PIPR has galvanized the momentum in our community because they see how committed The Ottawa Hospital is to making a difference.

“This investment by PIPR into research at The Ottawa Hospital has been a total game-changer for us. It has allowed us to pursue projects that otherwise would not yet be funded.”

Donor dollars translate into results

Dr. Sachs practicing the use of 3D technology
Dr. Adam Sachs practicing the use of 3D technology for neurosurgery.

PIPR’s support helped bring deep brain stimulation surgery (DBS) to The Ottawa Hospital. For someone like Karin Fuller, co-captain of team PIPR, she knows the positive impact this type of technology can have. “When my dad had that surgery he had to go to Toronto, which meant going back and forth for the appointments. It was a lot for him and for our family. Helping to bring DBS to our community is a tangible example of what we’ve been able to do as a group to support The Ottawa Hospital,” says Karin.

Also developed at The Ottawa Hospital is the world’s first 3D virtual reality system for neurosurgery. It is being used to increase the accuracy of DBS surgery for patients with Parkinson’s. Our neurosurgeons are the first in the world to use this technology in this way and the goal is to improve the outcome for patients.

Promise for the future

It’s also expected that one day 3D technology could be in every department throughout the hospital. The possibilities for this technology are endless and, in the future, it could help countless patients, beyond Parkinson’s disease.

When Dr. Schlossmacher looks at the puzzle of Parkinson’s, which he’s been investigating for 20 years, he sees promise.

“At The Ottawa Hospital, we think outside the box and that’s how we’re able to unravel mysteries through our research. Research which we hope will one day be transformational.”   Dr. Michael Schlossmacher

He also has sheer determination in his eyes. “To the chagrin of my wife, I will not retire until I put a dent into it. The good news is, I may have 20 years left in the tank but, ultimately, I’d like to put myself out of business.”

The Ottawa Hospital is a leading academic health, research and learning hospital proudly affiliated with the University of Ottawa.

We need your help to fund research into diseases like Parkinson’s at The Ottawa Hospital and to provide more hope for patients in the future.

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Minimally invasive surgery ‘perfectly’ restores hearing

After a brain tumour threatened to make Denis Paquette deaf in both ears, and traditional brain surgery deamed too risky, The Ottawa Hospital doctors were challenged to work collaboratively to find a solution.

Minimally invasive surgery ‘perfectly’ restores hearing

After a brain tumour began growing in to his ear, Denis Paquette was at risk of losing his hearing in both ears – a circumstance that would strip him of his ability to hear his wife’s voice forever. With traditional brain surgery deemed too risky, Dr. Fahad Alkherayf and Dr. Shaun Kilty were challenged to find a safer solution – removing the tumour through his nose.

A life unlike most

Since birth, Denis Paquette, now 66, has been deaf in one ear. It’s clear he has a deep-rooted understanding of the nuances of having such an impairment. After all, it’s all he’s ever known. Holding the phone to his good ear and turning his head while in conversation to better hear someone are habits he was quick to establish.

But in 2016, these little tricks, which he has cultivated throughout his life, started to fail him. Conversations were getting harder to hear and Denis’ wife, Nicole,

Hospital around the world are looking to The Ottawa Hospital tDr. Fahad AlKherayf and Dr. Shaun Kilty standing in an operating room at The Ottawa Hospital.
Hospitals around the world are looking to The Ottawa Hospital to learn about the type of minimally invasive brain surgery performed by Dr. Fahad Alkherayf (right) and Dr. Shaun Kilty.

noticed that Denis was progressively increasing the volume on the television.

“I was beginning to be frustrated because people were talking to me, but I was just getting parts of the conversation,” said Denis.

Journey to diagnosis

Concerned about his hearing, Denis visited his family doctor. He was sent for various hearing tests, each showing that something was wrong. It was then that Denis was referred to Dr. David Schramm, a hearing specialist at The Ottawa Hospital. Dr. Schramm ordered an MRI that revealed Denis had a rare tumour growing in his skull and in to his inner ear. These weren’t the results Denis and Nicole were expecting.

“I didn’t know what to expect, so it was really shocking news,” said Denis.

Denis needed specialized surgery to remove the tumour and required the expertise of neurosurgeon Dr. Fahad Alkherayf and ear, nose, and throat (ENT) specialist Dr. Shaun Kilty.

Due to the complexity of Denis’ diagnosis, Dr. Alkherayf and his team were challenged to remove the tumour without jeopardizing his hearing completely.

“The tumour was growing in his skull and in to his inner ear, putting pressure on his hearing nerve on the good ear. There was a risk he would lose the rest of his hearing,” said Dr. Alkherayf.

“Despite it being a benign lesion, the impact of it was huge.” – Dr. Fahad Alkherayf

Dr. Alkherayf knew that removing the tumour through Denis’ ear could risk permanently damaging what little hearing he had left. With this in mind, Dr. Alkherayf recommended that Denis undergo the newly-available minimally invasive brain surgery. With this technique, his tumour would be removed through his nostrils instead of through his ear.

The risk was high

Traditionally, brain surgery for a case such as Denis’ would take place through the ear and require a large incision through the skull. But with only one good ear to start with, performing brain surgery in this way could permanently and completely impair his hearing.

Not only could Denis lose his hearing, the traditional method of removing such a tumour has a greater risk of complication, a higher chance of infection, and demands a longer recovery period – up to six months. It would also leave a large scar, beginning in front of his ear and extending all the way up and behind it. The thought of undergoing such a procedure alone was nerve-racking.

A new surgery technique

Over the last several years, Dr. Alkherayf has advanced new techniques for removing various types of brain tumours, known as minimally invasive surgery.

Minimally invasive surgery has transformed the way operations are performed by allowing surgeries to be carried out as keyhole procedures, a surgical procedure that provides access to parts of the body without having to make large incisions. This operation is much safer, with risk of infection and recovery time greatly reduced. In many cases, patients are discharged within just a few days of surgery.

“It’s quicker to recover for patients,” said Dr. Kilty. “Because they don’t have to recover from the extensive dissection that traditional approaches [surgeries] require.”

Performing these types of surgeries requires two physicians – a neurosurgeon to remove the tumour and an ENT to provide access to the tumour through the nose and to control the endoscope. Due to the complex nature of these surgeries, Dr. Alkherayf is among a small group willing to perform them. Many are looking to The Ottawa Hospital to learn about this innovative surgery. “We have become one of the top places in Canada for this technique,” said Dr. Alkherayf.

Denis Paquette sitting outside at a table at The Ottawa Hospital.
Denis Paquette’s hearing was restored after receiving minimally invasive brain surgery at The Ottawa Hospital.

“They did a miracle on me”

On July 20, 2016, Denis underwent a five-hour operation during which Dr. Alkherayf and Dr. Kilty were able to successfully access and remove the tumour through his nose. The insertion of a microscopic tube that would travel from the cavity of where the tumour once was to his sinuses which would prevent future buildup of fluid and prevent the chance of reoccurrence.

When he woke up, Denis was astounded that he could hear his wife’s voice. “I woke up and wow,” said Denis, “I could hear!”

Just two days after his surgery, he was discharged.

“They did a miracle on me. They did something fantastic,” said Denis, whose hearing tests have been perfect ever since.

“They did a miracle on me. They did something fantastic.” – Denis Paquette

Thanks to the care Denis received at The Ottawa Hospital and the benefits of minimally invasive surgery, he can now enjoy watching his television shows and conversing with his wife without issue. He no longer fears a life without sound.

Your support today will allow us to continue to provide the latest treatments for patients like Denis.

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Three innovative researchers honoured at The Ottawa Hospital Gala

It was a sold-out night at The Ottawa Hospital Gala, presented by First Avenue Investment Counsel, which recognized three innovative researchers.

OCTOBER 26, 2019 OTTAWA, ON – It was a sold-out night at The Ottawa Hospital Gala, presented by First Avenue Investment Counsel, which recognized three innovative researchers. The elegant ballroom of the Westin Hotel was transformed with exquisite décor and a delectable four-course meal, enjoyed by more than 700 guests. It also marked the final gala with Dr. Jack Kitts as President and CEO of The Ottawa Hospital, who will retire in 2020. Guests paid tribute to Dr. Kitts with a standing ovation for his dedication to providing compassionate and world-class care to the Ottawa community through his leadership since 2002.

The Ottawa Hospital Gala celebrated the transformational work of three researchers dedicated to improving care. Congratulations to this year’s three award winners:

Faizan Khan, recipient of the Worton Researcher in Training Award, recognized for his outstanding work on vein blood clots, including a recent British Medical Journal study establishing long-term risks and consequences of clot recurrence.

Dr. Marjorie Brand, recipient of the Chrétien Researcher of the Year Award, recognized for her groundbreaking discovery of how a blood stem cell decides whether to become a red blood cell or a platelet-forming cell.

Dr. Paul Albert, recipient of the Grimes Research Career Achievement Award, recognized for his leadership in Neuroscience, as well as his innovative work on what causes depression and how to treat it.

The Ottawa Hospital is recognized for its world-leading research that attracts internationally recognized scientists and clinicians from around the world. Tim Kluke, President and CEO of The Ottawa Hospital Foundation, emphasized that it’s corporate and individual philanthropic gifts, which make that a reality. “We are privileged to have the support of a generous community which is helping this city advance research to find new hope for patients now and in the future.”

First Avenue Investment Counsel returned as the presenting sponsor of The Ottawa Hospital Gala this year. Kash Pashootan, CEO and Chief Investment Officer at First Avenue Investment Counsel, said it’s a partnership that aligns perfectly. “Innovative research is a necessary investment in the future of health care in our community and we’re proud to fulfill our duty to The Ottawa Hospital. At First Avenue Investment Counsel, we advise families on all aspects of their financial picture including managing their assets to ensure their secure future for them and future generations. Together, we’re laying the building blocks for the future.”

About The Ottawa Hospital: 

The Ottawa Hospital is one of Canada’s largest learning and research hospitals, with more than 1,200 beds, 12,000 staff members and an annual budget of about approximately $1.3 billion.

The focus on learning and research helps to develop new and innovative ways to treat patients and improve care. As a multi-campus hospital affiliated with the University of Ottawa, specialized care is delivered to the eastern Ontario region and the techniques and research discoveries are adopted around the world. The hospital engages the community at all levels to support our vision for better patient care.

From the compassion of our people to the relentless pursuit of new discoveries, The Ottawa Hospital never stops seeking solutions to the most complex patient-centred care. For more information about The Ottawa Hospital, visit ohfoundation.ca.

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Local activist donor pledges $500,000 to take on cancer

Gavin Murphy is unwavering when it comes to his desire to maintain a world-class health care system in our city. As a result, he’s willing to step forward and be an activist donor.

Local activist donor pledges $500,000 to take on cancer

Gavin Murphy is unwavering when it comes to his desire to maintain a world-class health care system in our city. He’s unwilling to settle for anything less and he doesn’t think anyone in our community should either. Gavin believes each resident needs to play an active role in giving back, and that’s why this self-described “activist” donor is sharing his story – a story he hopes will lead to a cure for cancer.

This New Edinburgh resident has committed $500,000 to support the Radiation Medicine Program at The Ottawa Hospital – it’s what he wants his lasting legacy to be.

While the Ottawa lawyer isn’t looking for public recognition, he’s not shy about sharing the news of his gift as he hopes it will inspire others to do the same. “Scarce government resources requires those in a position to give significant gifts to step forward and support The Ottawa Hospital.” Gavin adds, “By giving serious thought to my philanthropy, I am hoping to help improve discovery and care for our families, friends, and neighbours.”

Gavin’s interest in cutting-edge research is what enticed him to make this tremendous gift to Radiation Medicine Program with the hope that findings will one day be published. He’s excited about the opportunities which lie ahead and the advancements that will be made.

 

“I want to give this money while I’m still alive. It’s great that people leave money in their estates, I think that’s wonderful but I want to see the fruits of my labour, in my lifetime.” – Gavin Murphy

 

 

Gavin Murphy takes pride in describing himself an activist donor.
Gavin Murphy takes pride in describing himself an activist donor.

It’s the fruits of his labour, which will leave his fingerprints on advancements in cancer care to help others in the future. For Gavin, that’s truly exciting. “I like the idea of funding new, innovative technology. It will leave a lasting legacy and this gift is providing the building blocks for future research in this field.”

Donor support is vital to providing doctors and researchers with state-of-the-art tools. It’s also what allows The Ottawa Hospital to be a trailblazer when it comes to transformational advancements. Dr. Miller MacPherson, the Head of Medical Physics at The Ottawa Hospital says, “It’s the generosity of donors like Gavin which allows The Ottawa Hospital to be innovative with new technologies. This support will provide insight for new discoveries and will have an impact on care through research and technology advancements in the field of cancer research.”
Dr. Jason Pantarotto, Head of Radiation Oncology at The Ottawa Hospital, echoes that sentiment, noting that donations to the Radiation Medicine Program are particularly precious. “Despite radiotherapy being a key treatment for nearly 5,000 cancer patients each year in Ottawa, the amount of research dollars available to improve the science is pretty sparse. We are extremely grateful to donors, such as Gavin, who see the benefits of investing in the team and equipment that exists here at The Ottawa Hospital.”

For Gavin, his ultimate goal is to help find a cure for cancer.

“This gift will provide a foundation to greater understanding of cancer and I hope it will help obliterate cancer sometime down the road.”- Gavin Murphy

The reality is The Ottawa Hospital will touch each person in our community in some way. For Gavin, that’s a good reason for not only himself but also for others to step forward. “If people want to be well looked after in a world-class system, we have to ensure a world-class system is maintained.”

The way Gavin sees it, we’ll all need The Ottawa Hospital at some point, and there’s a way for each person in our community to support it. “You need people who are in the position to give, and those who can give smaller amounts, in greater numbers to support the hospital equally.”

To be a donor like Gavin, supporting patient-centred care and life-saving research at The Ottawa Hospital, please donate.

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Planting platinum seeds to transform treatment

Made-in-Ottawa platinum seeds are improving an already incredibly powerful and precise radiosurgery treatment system for tumours in the head, neck, and organs, such as lungs and liver.

The Ottawa Hospital, The Ottawa Hospital Foundation

 

For tumours in the head and neck, or in organs that move constantly, like the lungs, kidneys, and liver, platinum seeds, about one third the size of a grain of rice, are implanted around a tumour. The seeds improve the CyberKnife robot’s accuracy in delivering precise doses of radiation by helping its software detect and track the motion of the tumour. These made-in-Ottawa platinum seeds are improving an already incredibly powerful and precise radiosurgery treatment system for tumours in the head, neck, and organs, such as lungs and liver.

Click here to read more about platinum seeds.

The Ottawa Hospital, The Ottawa Hospital Foundation, Platinum Seeds, Cancer
Platinum seeds, a third the size of a grain of rice, are improving the accuracy of CyberKnife treatments.

The Ottawa Hospital, The Ottawa Hospital Foundation

The Ottawa Hospital is providing advanced treatment of benign and malignant tumours in inoperable places with state-of-the-art technology for the best possible patient outcomes.

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We were in the best hands

Shane and Ellen Ottens have seen their four boys go through their fair share of bumps, bruises and broken bones over the years. However, nothing prepared them for the diagnosis their son, Spencer, would receive in the fall of 2017. 

A parent’s worst nightmare

14-year-old Spencer’s eye became reddish and tearing for more than a week; and this strange blockage was protruding from his nose. Despite repeated efforts, it would not come out.

That’s when Spencer’s mom, Ellen, knew he needed help and they would ultimately end up in CHEO’s emergency department. Doctors ordered a CT scan. It was around midnight; Ellen recalls when the results came in.

“A gravely concerned looking doctor asked me, ‘Did you know that Spencer has a tumour in his head?’”

It was not the news any parent wants to hear. 

The growth, which was protruding from Spencer’s nose, was biopsied. While benign, that tumour was resulting in the quick deterioration of Spencer’s health. When Ellen asked to see the CT scan, she recalls searching the picture for a grape or golf ball sized image attached to a nose growth.  

“I didn’t see any and asked where it was.  ‘It’s the grey area’, the doctor said.” 

The grey area was over half of his face. 

“I didn’t even want to think about what his face would end up looking like after all the cutting they’d have to do to remove so much material, but I had to ask.” 

The doctor revealed the tumour was larger than any he had ever worked with. It was for that reason and the fact it was reaching up to the floor of the brain, he told Spencer’s parents they couldn’t perform the surgery. 

This type of tumour would need a specialized team of an ear, nose and throat doctor along with a neurosurgeon working together.  Ellen recalls thinking she would take her son anywhere in the country to get the help he needed.

Specialized care at The Ottawa Hospital

However, the specialized care was nearby at The Ottawa Hospital. A highly skilled team would perform minimally invasive surgery and remove the tumour through Spencer’s nose.

Just over a week later, with his condition worsening, Spencer was to be admitted to The Ottawa Hospital. He had another CT, an MRI, and the specialized team was monitoring his optic nerve behind his bulging eye to ensure it wasn’t being severed by the growing tumour.

Two days later Spencer underwent a 4-hour surgery, which helped stop 80% of the blood flow feeding the tumour. The remaining 20% would maintain blood flow to his brain.

The next day the highly skilled team, which included Drs. Fahad Alkherayf and Shaun Kilty performed an eight-hour surgery. With expert precision, and state-of-the-art technology, they would remove the large tumour from Spencer’s face and base layer of the brain. They also rebuilt that layer to prevent the fluids that protect the brain from leaking out.   

This minimally invasive surgery, removing the tumour and rebuilding the layer, was performed through Spencer’s nose by Dr. Alkherayf who has the greatest number of surgical hours of training for this procedure in Canada. 

Dr. Fahad Alkherayf, The Ottawa Hospital
Dr. Fahad Alkherayf

 

Dr. Shaun Kilty, The Ottawa Hospital
Dr. Shaun Kilty

A Canadian Medical First

In order to rebuild the brain layer, 3D printing technology also aided doctors during the surgery. Ellen says it’s remarkable. “It’s really pretty cool the advancements which have been made to help patients in our community.”  In 2016, The Ottawa Hospital became the first hospital in Canada to have an integrated medical 3D printer.

Ellen says her initial concerns of recovery completely faded thanks to this minimally invasive technique. “It was incredible. Spencer was home again only three days after surgery!” 

When she thinks back to the fear of the initial diagnosis to where Spencer is today, back at school and active, several thoughts comes to mind. 

I was immensely grateful to God and The Ottawa Hospital, and I truly feel that we were in the best hands.”

 

 

We need your help today to fund innovative research and vital medical equipment to help patients like Spencer get expert help when they need it most.

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Symptoms strike and reveal shocking brain cancer diagnosis

“He saved my life. Twice.”

While cycling on vacation in 2016, Ida Chen noticed something was wrong with one of her legs. She had experienced some minor symptoms in the weeks prior, but suddenly, her right leg stopped working. Unable to balance, she fell and couldn’t continue her ride. She would ultimately turn to The Ottawa Hospital for revolutionary treatment to help extend her life.

Update: Sadly, Ida Chen passed away on November 6, 2019. The following story was written earlier this year, after Ida had undergone fluorescence-guided surgery at The Ottawa Hospital.

 

Symptoms strike and reveal shocking brain cancer diagnosis

While out on a bike ride enjoying the warmth of Palm Beach, Florida, in December 2016, Ida Chen noticed something was wrong with one of her legs. She had experienced some minor symptoms in the weeks prior, but suddenly, her right leg stopped working. Unable to balance, she fell and couldn’t continue her ride.

The fall left her stunned. “After I fell, I could walk. It wasn’t a permanent issue,” said Ida. However, a gash in her leg sent her to a walk-in clinic near where she and her husband, Clarence Byrd, have their vacation property.

When Ida recounted what happened to the doctor, he assured her there wasn’t an infection in the leg but he was deeply concerned about what had led to the fall. He advised her to contact a neurologist.

The neurologist scheduled an MRI, which revealed Ida had a 4 cm sized tumour in her brain which had features concerning for a malignancy. Recognizing that she may not survive a trip back to Canada for surgery, the neurologist contacted a neurosurgeon at the University of Miami Hospital who performed surgery only days later. Ida’s tumour was identified as a glioblastoma multiforme, an aggressive form of brain cancer. Unfortunately, not all the tumor could be completely removed, with 25% left behind due to the involvement of the tumor with the motor control areas for Ida’s leg.

Glioblastoma multiforme – brain cancer

For Clarence, it was hard news to absorb.

“It’s a particularly nasty cancer because it has fuzzy edges and they have trouble ensuring they get all of it.” Clarence Byrd, Ida’s husband

Ida advised her Ottawa doctor of the situation. Despite the fact that it was Christmastime, Dr. Lisa Lezack of the University of Ottawa Health Services made great efforts to ensure that when Ida returned to Canada, she would get prompt treatment.

Once back in Canada in early January, Ida was scheduled for radiation and chemotherapy. However, a new MRI showed that the tumour had returned to almost 100 percent of its original size.

Once again, just weeks after her first surgery, Ida was wheeled into the operating room, this time at The Ottawa Hospital under the care of neurosurgeon Dr. John Sinclair. It was a seven-hour surgery, followed by six weeks of radiation treatment and chemotherapy.

Ida’s initial prognosis was 12 – 15 months to live. Eighteen months after her diagnosis she had surpassed the odds, but the cancer was back, and she needed another surgery – her third in less than two years. This time, Dr. Sinclair had access to a revolutionary microscope, which was on loan to The Ottawa Hospital.

Ida, at home, enjoying every moment she gets to play piano.
Ida, at home, enjoying every moment she gets to play piano.

Illuminating cancer

Dr. Sinclair had traveled to Switzerland to receive training for fluorescence-guided brain surgery and was able to perform such surgery in the context of a trial using a microscope on loan to The Ottawa Hospital. The technique requires patients to drink a liquid containing 5-aminolevulinic acid (5-ALA) several hours before surgery. 5-ALA concentrates in the cancerous tissue and not in normal brain tissue. As a result, malignant gliomas “glow” a fluorescent pink color under a special blue wavelength of light generated by the microscope while the normal brain tissue does not fluoresce. This permits surgeons to achieve a complete resection of a tumour in many more patients, with recent studies demonstrating that this can now be achieved in 70% of surgeries as opposed to the previous 30% average.

“Seeing the brilliantly coloured tumours helps neurosurgeons remove more of the cancerous cells,” said Dr. Sinclair. “It’s like turning on the lights. You can actually see the difference between the tumour and the brain tissue. It’s dramatic.”

Added Dr. Sinclair, “Survival and quality of life are both dramatically impacted by this technology.”

In later discussions with Dr. Sinclair, it was clear that, without the use of the microscope Ida would have lost the use of her right leg. Ida explained, “He would have had to take out more of my brain matter and disable me to be sure he had all of the cancer cells.” She also learned that, because the microscope was available for a limited time on loan from the manufacturer, she was one of only ten people in Canada who benefited from the loan of the microscope.

Shortly after Ida’s surgery, a fundraising campaign was initiated to acquire a permanent microscope for Fluorescence Guided Surgery at The Ottawa Hospital. Recognizing how vital this piece of equipment was, Ida and Clarence made a substantial contribution towards its purchase. Dr. Sinclair performed the first surgery with the new microscope on August 26th.

“He saved my life.”

Thanks to the revolutionary care she received right here at home, Ida is enjoying a normal life style. “The Ottawa Hospital has given her outstanding service. Dr. Sinclair in particular has been very impressive,” said Clarence.

Ida is quick to add, “He saved my life. Twice.”

 

The Ottawa Hospital is a leading academic health and research centre and teaching hospital proudly affiliated with the University of Ottawa.

Help us invest in state-of-the-art technology. Innovation at The Ottawa Hospital is creating change now for better health tomorrow.

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