THE RIDE – celebrated 10 years raising $1.07 million
900 cyclists and volunteers came together Sunday and raised $1.07 million to support leading-edge research at The Ottawa Hospital. In ten years, THE RIDE, powered by Mattamy Homes, surpassed the $14 million mark.
Category: Creating Tomorrow
SEPTEMBER 8, 2019, OTTAWA, ON – 900 cyclists and volunteers came together Sunday and raised $1.07 million to support leading-edge research at The Ottawa Hospital. In ten years, THE RIDE, powered by Mattamy Homes, surpassed the $14 million mark.
Tim Kluke, President and CEO of The Ottawa Hospital Foundation, said the research advancements we’ve seen in the last ten years have been remarkable. “When you look at immunotherapy treatments and CAR-T cell therapy for cancer treatments to stem cell treatments for MS patients, support for research at The Ottawa Hospital has been truly transformational. The dedication we’ve seen from so many riders and volunteers over the past 10 years has been an incredible way to bring our community together.”
“The dedication we’ve seen from so many riders and volunteers over the past 10 years has been an incredible way to bring our community together.”
Tim Kluke, President and CEO of The Ottawa Hospital Foundation
When it comes to inspiring our community to give back to The Ottawa Hospital, Mattamy Homes has been a true leader. Kevin O’Shea is Mattamy Homes Division President, “We not only take great pride being the title sponsor of THE RIDE, but we also participate as a team. It’s a positive way to promote health and wellness in our workplace, as well as, support our leading health care centre in eastern Ontario.”
Making THE RIDE come to life over ten years ago had a great deal to do with Robert Merkley, founder of Merkley Supply Ltd. The team captain of The Brick Peddlers, Merkley had a vision of bringing a phenomenal cycling fundraiser to Ottawa and he, along with Claude DesRosiers and Roger Greenberg, helped make it a reality. “I remember thinking to myself, if I was spearheading this new fundraiser for The Ottawa Hospital, I had better bring together a good, strong team. That’s how The Brick Peddlers came to life. I’m proud to say it’s the largest, most successful and most enthusiastic RIDE team.”
In addition to the 50KM closed route and the 109KM open road route, the 10th edition of THE RIDE also saw the inaugural Alinker one kilometre loop. Dozens of participants joined THE RIDE using the Alinker, a relatively new walk assist bike. These bikes give people with mobility challenges a chance to be a part of this vital fundraiser for research at The Ottawa Hospital – research which could potentially help them one day.
The Ottawa Hospital is one of Canada’s largest learning and research hospitals, with more than 1,200 beds, 12,000 staff members and an annual budget of about approximately $1.3 billion.
Our focus on learning and research helps us develop new and innovative ways to treat patients and improve care. As a multi-campus hospital affiliated with the University of Ottawa, we deliver specialized care to the eastern Ontario region and our techniques and research discoveries are adopted around the world. We engage the community at all levels to support our vision for better patient care.
From the compassion of our people to the relentless pursuit of new discoveries, The Ottawa Hospital never stops seeking solutions to the most complex health-care challenges. For more information about The Ottawa Hospital, visit ohfoundation.ca.
It was an unimaginable brain tumour diagnosis that Natasha Lewis never saw coming. It started one morning, in 2016; the mother of three remembers waking up with a strange symptom.
“I looked in the mirror and noticed my tongue was twisting to the left,” recalled Natasha. Her first thought was that she had a stroke, but she was confused by the fact the rest of her body seemed normal.
She went for tests at The Ottawa Hospital and three days later, her life changed. Natasha was driving when she got the call. Tests revealed a tumour in her brain. “I felt so sick when I heard the news that I had to pull over.”
Diagnosis shatters mom’s world
Natasha Lewis with her husband, Marvin.
Natasha had a schwannoma tumour on her hypoglossal nerve, which controls the tongue. Schwannomas are rarely found in the brain and even more rarely on that specific nerve. Her mind was racing. “I was only 38 years old, a wife, and mother of three young children.”
When she got home to St. Isidore, east of Ottawa, she sat with her youngest daughter as she relayed the information to her husband. “I had tears falling down my face. I didn’t know what was going to happen.”
All this time she thought she was healthy. “I was losing weight, running, and training for marathons and triathlons.” All she could think about were her three, beautiful, young children. What would this mean for them?
“We’re in the right place. We’re in Canada, we’re close to Ottawa, we’ll get the best care.”
– Marvin Lewis
However, her husband, Marvin, was a pillar of strength. She remembers him saying, “We’re in the right place. We’re in Canada, we’re close to Ottawa, we’ll get the best care.” She adds, “He has never been so right.”
Natasha was cared for at The Ottawa Hospital – one of the few hospitals in Canada that could help her because of the complexity of her diagnosis. Dr. Fahad Alkherayf, a world-class skull base surgeon told her the tumour was benign and he would closely monitor her in the months ahead.
Normally, a schwannoma is a tumour that grows in the sheaths of nerves in the peripheral nervous system, or the parts of the nervous system that aren’t in your brain or spinal cord. Schwannomas are usually low-grade tumours, meaning they can often be successfully treated, but they’re still serious and can be life-threatening. It is estimated that in 2021, there will be 27 new primary brain tumours diagnosed every day in Canada. Non-malignant tumours account for almost two-thirds of all primary brain tumours.
Condition deteriorating
Less than a year later, while the tumour had grown only slightly, Natasha’s quality of life was deteriorating.
She was scared to see what was happening with her body. Initially, there was drooling from both sides of her mouth, then Natasha started slurring her words. It was a little embarrassing, but she could handle it. In addition, swallowing became more difficult and her shoulder felt like it was on fire. That’s when she lost the ability to move it and couldn’t use it to work out. Even worse, she couldn’t lift her children.
By May 2018, it was time to operate when the side effects continued to worsen.
Surgeons ready for complex procedure
It was an intricate 10-hour brain surgery. Dr. Alkherayf brought in ear surgeon, Dr. David Schramm, a colleague at The Ottawa Hospital, to assist because of where the tumor was located. Dr. Alkherayf wanted to have another highly-skilled surgeon with him because the tumour was near the ear canal.
Natasha with Dr. Alkherayf
The surgical team accessed her brain through the base of the skull. While minimally invasive surgeries are becoming more common than open surgeries, where the brain is accessed through a more invasive and significant incision, it wasn’t an option for Natasha because there were too many nerves to navigate. With traditional surgery, patients can spend a week recovering in the hospital. With minimally invasive surgery, they sometimes go home the same day. In Natasha’s case, though complex and intricate, open surgery was the less risky option and she benefitted from the expertise available to her right here in Ottawa.
Dr. Alkherayf knew they likely couldn’t remove all of the tumour because of those surrounding nerves; damaging them meant Natasha might lose her ability to hear and swallow. While these risks were terrifying for Natasha, Dr. Alkherayf made her feel confident and gave her hope.
“I remember Dr. Alkherayf said there would be another chapter in my life. I held on to those words.”
– Natasha Lewis
Incredibly, her surgeons were able to remove ninety-nine percent of the tumour leaving only a small sliver so they didn’t have to cut the nerves.
Journey continues after remarkable recovery
Following her surgery, Natasha made a remarkable recovery. She has her hearing — it’s a little muffled but she’s told over time it will return to normal. She’s back at work, her speech is back to normal, and she can swallow without difficulty.
This active mom’s recovery has been nothing short of remarkable. Four months post-surgery, Natasha ran the Commander’s challenge at the Army Run. She started training for a marathon and she has the dream of qualifying for the Boston Marathon.
However, in 2019, she received news the tumour had grown back, despite being told the odds of that were low. Natasha was devastated, but her healthcare team would turn to the CyberKnife – a revolutionary piece of equipment that arrived at The Ottawa Hospital in 2010, as a result of donor support.
“At first I was nervous to have the CyberKnife treatment. I had to go by myself because we had no one to watch the kids. However, the staff was very patient, kind, and made you feel warm and safe. I was able to watch a movie and the machine did the work,” recalls Natasha. She would have three, one-hour treatments.
Natasha and her family
“I had to go by myself because we had no one to watch the kids. However, the staff was very patient, kind, and made you feel warm and safe.”
– Natasha Lewis
Today, she prays that “Jim,” the name she’s given the tumour, will not come back. While there’s uncertainty over what will happen next, she continues to be active with her running and most importantly, she can run, play with, and hug her three children. “I can hear them laugh and tell me they love me. There is no greater feeling in the world,” smiles Natasha.
The Ottawa Hospital is a leading academic health, research, and learning hospital proudly affiliated with the University of Ottawa.
Categories: Creating Tomorrow, Patient Care
Stem cell potential
Acute kidney injury affects one in five intensive care patients. A staggering fifty percent of those patients will not survive.
Doing the rounds of the intensive care unit several years ago, nephrologist Dr. Kevin Burns was struck by the number of patients with acute kidney injury. While they had come to intensive care for other serious illnesses, experiencing low blood pressure, shock, infections, blood loss after an operation, or needing to take certain medications, had injured their kidneys.
“Despite ongoing research in this area for over 60 years, there is no treatment,” said Dr. Burns. “Things have been tried to help the kidneys recover and absolutely nothing has worked to date.”
That is until now. Dr. Burns and his fellow researchers at The Ottawa Hospital Kidney Research Centre are uncovering ways to help kidneys recover from injury and to prevent it from happening in the first place.
Nephrologist and senior scientist Dr. Kevin Burns is investigating how stem cells could regenerate kidneys after acute kidney injury.
Chronic kidney disease – preventative research and early treatment
While exciting progress is being made in treating acute kidney injury, researchers at The Ottawa Hospital are also looking into ways to improve detection and treatment of chronic kidney disease.
“If we can catch the disease earlier, treatments will be more effective at preventing or delaying kidney failure. Any way that we can buy time and prevent or delay losing kidney function will be invaluable to patients,” said researcher Dr. Dylan Burger, a world expert laboratory scientist at The Ottawa Hospital’s Kidney Research Centre.
He is developing a diagnostic test that can predict if a person is at risk for developing kidney disease rather than relying on the current tests which show when it is already present, often at an advanced stage.
World-first technique for early detection
In the lab, Dr. Burger’s team looked at what happens at the cellular level when people start to develop kidney disease and identified microparticles as the problem. These are tiny pieces that come off a cell when it’s stressed or injured and are released into the blood or urine causing damage to the kidney.
In response to this finding, the team has developed a technique to count microparticles in urine. This technique, which is still in the research phase, allows any patient’s urine to be tested to accurately determine their risk for developing kidney disease.
The results of this approach have been published and it is now being used in approximately 20 different labs around the world. A standardized technique is being developed so that any lab in the world can use the same diagnostic test for patients.
World expert laboratory scientist Dr. Dylan Burger watches student researcher Ozgun Varol.
World-class expertise
These studies are only part of the kidney research taking place at the Ottawa Hospital. As one of Canada’s largest health research centres, researchers and clinicians have tremendous opportunity to learn from each other and work collaboratively to bring treatments from the lab to the bedside.
The expertise of these scientists, the quality of their kidney research, and the number of publications is attracting researchers from around the world. This level of excellence and a resolve to remain at the forefront of research and discovery will directly translate into improved treatment and outcomes for patients.
To learn more about the leading research of The Ottawa Hospital and the life-changing innovations that are improving patient lives, please click here.
The Ottawa Hospital is a leading academic health, research, and learning hospital proudly affiliated with the University of Ottawa.
Categories: Kidney
After experiencing vision problems, severe headaches, and repeated transient ischemic attacks (TIA’s) –mini-strokes, John Fairchild was diagnosed with a tumour on his pituitary gland. With each TIA being potentially fatal or causing paralysis, and with surgery being high-risk, John began making detailed plans to help his wife carry on without him.
That was until September 2015, when minimally invasive brain surgery at The Ottawa Hospital saved his life.
In 2011, John had been told by a doctor in Edmonton that he had a tumour in his pituitary gland and the operation to remove it was too risky. The doctor advised him to wait several years until the procedure had been improved.
Five years later, John and his wife Suzanne had moved to Ottawa, and he was having regular TIA’s. During these mini strokes, his vision was reduced to seeing through a small hole, and his memory and speech were impaired. The 71-year-old was referred to see Neurosurgeon Dr. Fahad Alkherayf at The Ottawa Hospital. Dr. Alkherayf recommended John undergo the newly available minimally invasive brain surgery. With this technique, his tumour, which was benign, would be removed through his nostrils instead of the traditional more radical and risky surgery, which required opening up his skull.
The benefits of minimally invasive brain surgery
“It is a new field in neurosurgery,” said Dr. Alkherayf, who has advanced minimally invasive brain surgery techniques in recent years. “There are no incisions in the skull, no cut in the skin. Everything is done through the nose.”
This operation is safer with surgery time greatly reduced. It means patients not only spend less time in the operating room, but they go home sooner. They experience less complications and better recovery.
John Fairchild at home following his surgery
Vision and hope restored
“I believed there was some risk of being blind or dead after the operation, as it was so new,” said John. “I spent two months before the operation, training to carry on being blind. I taught my wife how to use the snow blower and handle the finances.
“When I opened my eyes in the recovery room, I could see a clock on the wall, and I could see the time! I wasn’t blind.”
— John Fairchild
The Ottawa Hospital is a North American leader in this procedure.
“We have been asked for consultations internationally,” said Dr. Fahad Alkherayf. “It’s a very exciting technique that has definitely improved patient care during these surgeries.”
A bright future
In the year since the operation, John has resumed his active life.
“Thanks to The Ottawa Hospital’s virtuoso surgery team, I am again now in vital good health – curling, skiing, golfing — with excellent vision and no headaches. I am extremely grateful for the extraordinary care I received in the hospital, and wonderful after-care.”
“I am so well now, you’d never know anything was ever wrong with me. I am very proud of the hospital and the medical team. You guys saved my life.”
— John Fairchild
The Ottawa Hospital is a leading academic health, research, and learning hospital proudly affiliated with the University of Ottawa.
Categories: Innovation and Technology, Innovation and Technology, Innovation and Technology, Innovation and Technology, Neuro
Originally published: July, 2019 Updated: August, 2022
Update: Recently, June had to go back on hemodialysis after complications of being on peritoneal dialysis for eight years. As she awaits another kidney donor, June continues to watch her family grow. She now has four grandchildren, two girls and two boys. In August 2022, we were thrilled to announce a $10-million gift from the Jones family to the Campaign to Create Tomorrow. Read more about their incredible gift.
June Jones lives a double life. During the day, she is busy, making cookies with her two granddaughters, working in her garden, and enjoying life. During the night, she sleeps hooked up to a dialysis machine. June needs a new kidney.
June making cookies after Christmas with her granddaughter.
The 58-year-old has been living with kidney disease for 30 years — over half her life.
In April 1989, not long after her second child was born, June felt extremely run down. Her physician was concerned she had too much blood in her urine and sent her to a nephrologist.
He diagnosed her with IgA nephropathy, disease caused by her body’s immune system attacking her kidneys.
June started on various medications after being diagnosed, but within nine years her disease had progressed, and her kidneys stopped working completely. She started dialysis in 1998.
“There is no cure for renal disease,” said June. “Once your kidneys fail, you’re put on dialysis or have a transplant. Your life is never normal.”
What kidneys do
The function of the kidneys is to remove waste and extra water from the blood to make urine. When kidneys stop working and no longer clean the blood, toxins accumulate in the body, and this can be fatal. Dialysis is an artificial method of cleaning the blood. It sustains a person’s life but is not a cure.
There are two different forms of dialysis. Hemodialysis removes waste products and extra water from the blood by circulating and filtering it through a machine. This is the most common form of dialysis that is often provided to patients at the hospital. Peritoneal dialysis circulates a fluid through the lining of your abdomen, or peritoneum, and the waste products from the blood pass into this fluid.
There are almost 1,000 patients on dialysis in the Ottawa area. Just over two hundred are on peritoneal dialysis. Dr. Brendan McCormick, Medical Director of the Home Dialysis Program, said some patients have been treated for over a decade on peritoneal dialysis but more typically patients spend about three years on this therapy. People leave peritoneal dialysis once they receive a kidney transplant, however, some need to transfer to hemodialysis due to complications of therapy.
The Ottawa Hospital Home dialysis program has the highest rate of kidney transplant in the province. For many patients, peritoneal dialysis serves as a bridge to kidney transplant.
Needing life-saving dialysis
According to a report by the Canadian Institute for Health Information released in December 2018, only 16 percent of Canadians on dialysis survive past 10 years. However, up to 74 percent of Canadians with a kidney transplant still have a functioning kidney after 10 years.
June was only on dialysis for six months before she received the call that a donor match had been found. On November 28, 1998, June received a kidney transplant from a deceased donor.
“It lasted four months shy of 15 years,” June said. “Then, the disease reappeared. I’ve been back on dialysis now for six years.”
In the Ottawa Region, 52 people have received kidney transplants this year. Unfortunately, there are still 165 people are on a waiting list.
“We need to do a lot of transplants to get people off dialysis to keep them alive longer with a better quality of life,” said Dr. Ann Bugeja, nephrologist and Director of the Living Kidney Donor Program. “We know that getting a living donor kidney is the best treatment for end-stage kidney disease and it lasts longer than getting a kidney from a deceased donor.”
When June’s kidney transplant failed six years ago, she had to go back on hemodialysis. She switched to peritoneal dialysis in July 2013. Once again, she has a dialysis machine at home, but this time she does dialysis for nine hours every night. It cleans her blood while she sleeps.
June’s nightly routine is a hassle and not a permanent solution. The membrane around her stomach has started to harden, which means the fluids can’t move back and forth as easily. What this means is that June will have to go on hemodialysis. The technology hasn’t changed in the 20 years since she was on it before and she remembers too vividly how it gave her severe headaches and was painful.
Making a difference for future generations
Russ and June Jones with their family at The Ottawa Hospital. The Jones family made a $1 million donation to support kidney research at The Ottawa Hospital.
June needs a new kidney. She is on a Canada-wide waiting list for one.
“Giving a kidney can change somebody’s life,” said Dr. Bugeja.
June lives with the daily hope of a second transplant.
She and husband Russ know first-hand how important research is to improve outcomes for people suffering with kidney disease. They heard researchers at The Ottawa Hospital were making great strides finding solutions to kidney diseases, including detecting kidney disease early and looking at the potential of stem cells to heal injured kidneys.
They decided the only way to make a difference for future generations of patients was through research and made a $1 million donation to support kidney research at the Kidney Research Centre at The Ottawa Hospital.
Their support will enable the research team at the Kidney Research Centre to continue to advance knowledge and improve the care of patients with kidney disease through world-renowned studies and research.
June’s children are now adults, married, and parents themselves — each with their own adorable little girl.
On January 8, 2019, the entire family was at The Ottawa Hospital Kidney Research Centre to unveil a plaque outside the Jones Family Foundation Kidney Research Laboratory. The plaque commemorates their incredible support of kidney research.
“I hope with research advancements, I will live to see my grandchildren’s memorable events,” said June.
“I hope to be there for their high school graduations, university graduations, their wedding days, and when they have children of their own. I also hope great strides are made so that their generation will find a cure.”
Listen to Pulse podcast and hear June Jones in her own words explaining what it’s like waiting for a second kidney transplant and why research is so important.
The Ottawa Hospital is a leading academic health, research, and learning hospital proudly affiliated with the University of Ottawa.
Categories: Donors, Kidney, Patient Care
Published: June 2019
Heather Harris was driving her fiancé to a golf tournament one morning in 2001 when her right foot went numb. By the end of the day, the numbness had spread up the entire right side of her body.
The then-24-year-old Thunder Bay resident had an MRI, which showed signs of multiple sclerosis (MS). The numbness was her first MS attack.
MS is a devastating disease that occurs when the immune system—which protects against foreign organisms such as viruses or bacteria—mistakenly attacks the body’s own central nervous system, which includes the brain, spinal cord, and optic nerve.
Heather Harris preparing herself prior to her transplant operation.
Heather met with neurologist and MS specialist Dr. Mark Freedman just a few weeks before her wedding. Heather’s disease was progressing rapidly. Dr. Freedman told her she would be in a wheelchair within five years.
Dr. Freedman and hematologist and scientist Dr. Harold Atkins were leading a world-first clinical trial, investigating whether patients with early, aggressive MS would benefit if their immune system was wiped out with high-dose chemotherapy and then regenerated with blood stem cells.
The stem cell treatment seemed her only hope. Heather and her husband moved to Ottawa for a year while she took part in the trial. She had the stem cell transplant in November 2006.
“It’s now 12 years since my stem cell transplant. I really feel like I’m cured,” said Heather who has no symptoms of the disease. She works full-time as a school principal, and is back to camping, skiing, running and driving a manual shift car.
Heather and her husband wanted to have a baby. With the help of in vitro fertilization, Heather had a baby girl in 2016. She said her little Zoe is the second miracle in her life.
In June 2016, Drs. Freedman and Atkins published the results of their successful clinical trial in The Lancet, a top medical journal. To date, more than 50 MS patients, like Heather, from all over Canada have undergone this treatment, which eliminated all signs of damaging active brain inflammation.
MAY 26, 2019, OTTAWA, ON – Close to 600 runners laced up their running shoes to support The Ottawa Hospital at Tamarack Ottawa Race Weekend. Together, they raised $296,060 by choosing to Run for a Reason and support an area of The Ottawa Hospital close to their hearts.
Since 1998, Run for a Reason has united individuals and teams, family, friends and employees of The Ottawa Hospital for one common cause—to support eastern Ontario’s most important health care hub. Funds raised will help transform patient care and advance research.
Nora Shipton returned as team captain of Preemies 4 Preemies this year. Her team raised funds for The Ottawa Hospital’s neonatal intensive care unit. She loved the experience of being part of something special that brought so many of her family and friends together. “I can’t wait to do this again next year. We had a lot of excitement on our team and it feels heartwarming to have so many people come out and support us.”
It’s this kind of community support, which makes Run for a Reason such a special fundraiser for The Ottawa Hospital. Tim Kluke, President and CEO of The Ottawa Hospital Foundation, said he sees it year after year. “The energy never disappoints. I know for each participant, whether they ran or walked, there is special meaning behind why they are fundraising for The Ottawa Hospital. These are our ambassadors who will leave a lasting legacy as we continue to make significant strides in research and patient care.”
“These are our ambassadors who will leave a lasting legacy as we continue to make significant strides in research and patient care.”
Tim Kluke, President and CEO of The Ottawa Hospital Foundation
The Ottawa Hospital is one of Canada’s largest learning and research hospitals, with more than 1,200 beds, approximately 12,000 staff members and an annual budget of about approximately $1.3 billion.
Our focus on learning and research helps us develop new and innovative ways to treat patients and improve care. As a multi-campus hospital affiliated with the University of Ottawa, we deliver specialized care to the Eastern Ontario region and our techniques and research discoveries are adopted around the world. We engage the community at all levels to support our vision for better patient care.
From the compassion of our people to the relentless pursuit of new discoveries, The Ottawa Hospital never stops seeking solutions to the most complex health-care challenges. For more information about The Ottawa Hospital, visit ohfoundation.ca.
They were born at The Ottawa Hospital on December 22, 2006, three and a half months premature. Rhys was 1 lb 8 oz, his identical twin Cullen was 1 lb 4 oz, brother Liam was 1 lb 10 oz, and his identical twin Daniel was 1 lb 3 oz.
“We knew it was quadruplets when I had the first ultrasound at eight weeks. There were four heart beats,” said Nora Shipton, the boys’ mother. “We had two sets of identical twins born by caesarean section. There was an amazing team of 25 people in the delivery room.”
The boys were born exceptionally early at 26 weeks and two days. Babies born before 35 weeks are considered high risk—their lungs and hearts aren’t fully developed yet.
Specialized Care at The Ottawa Hospital
Liam and Rhys at 2.5 months old
When the White quadruplets were admitted to the Neonatal Intensive Care Unit (NICU) at The Ottawa Hospital’s General Campus, making sure they kept breathing was critical. Liam didn’t need a tube to open his airway but received oxygen through a nose tube instead. The other three boys, however needed to be intubated (a breathing tube needed to be inserted). On top of breathing problems, Rhys and Liam also had heart surgery to correct faulty heart valves and were operated on the same day.
Sadly, despite every effort brother Cullen passed away on January 16, 2007 and brother Daniel two days later.
“The care that we received at the NICU was beyond excellent. The nurses and the doctors were so caring and attentive and helped us through the roller coaster that all NICU parents ride. We will forever be grateful to them for the love and the care that they gave to all of our babies.”
– Nora Shipton
A Bittersweet Return Home
Liam spent 88 days and Rhys 98 days in the NICU. It was bittersweet for Nora and Rob when Liam and Rhys finally came home.
Three months after losing two of their sons, Nora and Rob White decided that they wanted to give back; to help support the NICU team who had helped Liam and Rhys survive their early entry into the world. Initially, they were inspired to contribute towards a twin water bed that was needed. The boys were in individual water beds but co-sleeping was proven to help healing. They realized, however that the water bed was a one-time gift and preferred something that would continue to give over time, as a need would arise. Nora’s late father, Ralph Shipton, researched Legacy Endowment Funds, it was just the thing they were looking for. The family then created the Cullen James and Daniel Morgan White Legacy Endowment Fund, which would contribute over the long term to meet the endless needs of the NICU.
Rhys and Liams’ first ChristmasThe boys celebrate their first birthday
The NICU graduates today
Liam and Rhys on the first day of Grade 7.
At 13, the boys are active and busy. They enjoy downhill skiing, swimming and camping. Their grandparents own a farm, so they like to go out on their ATVs, drive the tractors and fish. Rhys is a voracious reader and loves swimming. Liam also enjoys swimming and does horseback riding. Like many children, they struggle in math a little bit. They are happy, healthy boys.
Running for a Reason
In May 2020, Liam and Rhys are doing something extraordinary for The Ottawa Hospital NICU. They are running 5kms as a family-team in the Ottawa Race Weekend. On top of doing something fun and healthy, they are running to raise money for the NICU and running for their two brothers Cullen and Daniel, in the hope of keeping future families like theirs together.
Money that is raised through the Cullen James and Daniel Morgan White Legacy Endowment Fund (aka Preemies 4 Preemies), gets put towards things that the babies need. It may go towards helping purchase a large item like an incubator or a waterbed, which helps maintain a baby’s body temperature when they come out of the incubator, or smaller items like waterless milk bottle warmers, positioning aids, cell phone sterilizers or kangaroo care chairs. The endowment fund was set up in memory of Cullen and Daniel and it will continue to help other families who will need the latest, most innovative care for their preemies. Thanks to the forward thinking of their grandfather, their brothers’ Legacy Endowment Fund can keep on giving into the future.
The Ottawa Hospital is a leading academic health, research, and learning hospital proudly affiliated with the University of Ottawa.
Categories: Donors, NICU
A parent’s worst nightmare
14-year-old Spencer’s eye became reddish and tearing for more than a week; and this strange blockage was protruding from his nose. Despite repeated efforts, it would not come out.
That’s when Spencer’s mom, Ellen, knew he needed help and they would ultimately end up in CHEO’s emergency department. Doctors ordered a CT scan. It was around midnight; Ellen recalls when the results came in.
“A gravely concerned looking doctor asked me, ‘Did you know that Spencer has a tumour in his head?’”
It was not the news any parent wants to hear.
The growth, which was protruding from Spencer’s nose, was biopsied. While benign, that tumour was resulting in the quick deterioration of Spencer’s health. When Ellen asked to see the CT scan, she recalls searching the picture for a grape or golf ball sized image attached to a nose growth.
“I didn’t see any and asked where it was. ‘It’s the grey area’, the doctor said.”
The grey area was over half of his face.
“I didn’t even want to think about what his face would end up looking like after all the cutting they’d have to do to remove so much material, but I had to ask.”
The doctor revealed the tumour was larger than any he had ever worked with. It was for that reason and the fact it was reaching up to the floor of the brain, he told Spencer’s parents they couldn’t perform the surgery.
This type of tumour would need a specialized team of an ear, nose and throat doctor along with a neurosurgeon working together. Ellen recalls thinking she would take her son anywhere in the country to get the help he needed.
Specialized care at The Ottawa Hospital
However, the specialized care was nearby at The Ottawa Hospital. A highly skilled team would perform minimally invasive surgery and remove the tumour through Spencer’s nose.
Just over a week later, with his condition worsening, Spencer was to be admitted to The Ottawa Hospital. He had another CT, an MRI, and the specialized team was monitoring his optic nerve behind his bulging eye to ensure it wasn’t being severed by the growing tumour.
Two days later Spencer underwent a 4-hour surgery, which helped stop 80% of the blood flow feeding the tumour. The remaining 20% would maintain blood flow to his brain.
The next day the highly skilled team, which included Drs. Fahad Alkherayf and Shaun Kilty performed an eight-hour surgery. With expert precision, and state-of-the-art technology, they would remove the large tumour from Spencer’s face and base layer of the brain. They also rebuilt that layer to prevent the fluids that protect the brain from leaking out.
This minimally invasive surgery, removing the tumour and rebuilding the layer, was performed through Spencer’s nose by Dr. Alkherayf who has the greatest number of surgical hours of training for this procedure in Canada.
Dr. Fahad Alkherayf
Dr. Shaun Kilty
A Canadian Medical First
In order to rebuild the brain layer, 3D printing technology also aided doctors during the surgery. Ellen says it’s remarkable. “It’s really pretty cool the advancements which have been made to help patients in our community.” In 2016, The Ottawa Hospital became the first hospital in Canada to have an integrated medical 3D printer.
Ellen says her initial concerns of recovery completely faded thanks to this minimally invasive technique. “It was incredible. Spencer was home again only three days after surgery!”
When she thinks back to the fear of the initial diagnosis to where Spencer is today, back at school and active, several thoughts comes to mind.
“I was immensely grateful to God and The Ottawa Hospital, and I truly feel that we were in the best hands.”
The Ottawa Hospital is a leading academic health, research, and learning hospital proudly affiliated with the University of Ottawa.
This website uses cookies to improve your experience while you navigate through the website. Out of these, the cookies that are categorized as necessary are stored on your browser as they are essential for the working of basic functionalities of the website. We also use third-party cookies that help us analyze and understand how you use this website. These cookies will be stored in your browser only with your consent. You also have the option to opt-out of these cookies. But opting out of some of these cookies may affect your browsing experience.
Necessary cookies are absolutely essential for the website to function properly. This category only includes cookies that ensures basic functionalities and security features of the website. These cookies do not store any personal information.
Any cookies that may not be particularly necessary for the website to function and is used specifically to collect user personal data via analytics, ads, other embedded contents are termed as non-necessary cookies. It is mandatory to procure user consent prior to running these cookies on your website.
